Last Updated: 07-08-2025

This Privacy Notice describes how Alzheimer’s Los Angeles (“we”, “us,” “our”) collects, uses and discloses information about individuals who use our website (AlzheimersLA.org), services, newsletters, tools and features, or otherwise interact with us (collectively, the “Services”). For the purposes of this Privacy Notice, “you” and “your” means you as the user of the Services, whether you are a client, donor, volunteer, event participant, website visitor, or another individual whose information we have collected pursuant to this Privacy Notice. Please note that the Services are designed for users in the United States only and are not intended for users located outside the United States.

Please read this Privacy Notice carefully. By using any of the Services, you agree to the collection, use, and disclosure of your information as described in this Privacy Notice. If you do not agree to this Privacy Notice, please do not use or access the Services.

1. CHANGES TO THIS PRIVACY NOTICE
We may modify this Privacy Notice from time to time, in which case we will update the “Last Updated” date at the top of this Privacy Notice. If we make material changes to the way in which we use or disclose information we collect, we will use reasonable efforts to notify you (such as by emailing you at the last email address you provided us, by posting notice of such changes on the Services, or by other means consistent with applicable law) and will take additional steps as required by applicable law. If you do not agree to any updates to this Privacy Notice, please do not continue using or accessing the Services.

2. COLLECTION AND USE OF YOUR INFORMATION

When you use or access the Services, we collect certain categories of information about you from a variety of sources.

Information You Provide to Us

Some features of the Services may require you to directly provide us with certain information about yourself. You may elect not to provide this information, but doing so may prevent you from using or accessing these features. Information that you directly submit through our Services includes:

• Basic contact details, such as name, address, phone number, and email. We use this information to create and maintain your account and provide the Services, and to communicate with you (including to tell you about products or services that may be of interest to you). When a person makes a memorial/honor donation, we collect the name and address of the person to be notified, if that is requested by the donor making the contribution.
• Demographic information, such as age, date of birth, gender, sexual orientation, ethnicity, race, preferred language, and military status. We collect this information when you register for certain events, and we use this information to provide the Services.
• Employment information, such as the name of the name of your employer and their contact information and your title. We collect this information if you register for a volunteer opportunity or event and we use this information to provide the Services. This information may also be collected if you select to search for your employer to determine if they match employee giving.
• Financial information, such as credit or debit card number and billing address. We collect this information if you donate to us or register for an event. We use this information to provide the Services to you. We do not retain your financial account information; this information is handled by our third-party service provider.
• Health information, such as medical condition and history. We use this information to provide the Services.
• Health insurance information, such as whether you have Medi-Cal or Medicare and your Medi-Cal/Medicare plan name and identification number. We use this information to provide the Services.
• Any other information you choose to include in communications with us, for example, when sending a message through the Services.

Information We Collect Automatically

We also automatically collect certain information about your interaction with the Services (“Usage Data”). To do this, we may use cookies and pixels (“Tracking Technologies”). Usage Data includes:

• Page views: The number of times you view a page on our website.
• Sessions: The number of user sessions.
• User demographics: Information about you, such as your browser and device type, operating system, and approximate geolocation.
• Time spent on pages: How long you spend on each page of our website.
• Referring sites: Where you came from to reach our site.
• Events: what documents you download, how far down you scroll on pages.
• Transactions: what purchases or donations you make on the site.

We use Usage Data to tailor features and content to you, market to you, provide you with offers or promotions, run analytics and better understand user interaction with the Services. For more information on how we use Tracking Technologies and your choices, see the section below, Cookies and Other Tracking Technologies.

Information Collected From Other Sources

We may obtain information about you from outside sources, including information that we collect directly from third parties, such as our service providers, and information from third parties that you choose to share with us. Such information includes:

• Analytics data we receive from analytics providers such as Google Analytics.
• ALZ Direct Connect Referral Program, if you participate in this Program, healthcare and aging service providers may provide information about you to us, such as your name, address, phone number, email, date of birth, language preferences, and Medi-Cal and/ Medicare plan name and identification number. They may also inform us of what Services they believe you require.

Any information we receive from outside sources will be treated in accordance with this Privacy Notice. We are not responsible for the accuracy of the information provided to us by third parties and are not responsible for any third party’s policies or practices. For more information, see the section below, Third Party Websites and Links.

In addition to the specific uses described above, we may use any of the above information to provide you with the Services and to maintain our business relationship, including by enhancing the safety and security of our Services (e.g., troubleshooting, data analysis, testing, system maintenance, and reporting), providing customer support, sending service and other non-marketing communications, monitoring and analyzing trends, conducting internal research and development, complying with applicable legal obligations, enforcing any applicable terms of service, and protecting the Services, our rights, and the rights of our employees, users, or other individuals.

Finally, we may de-identify or anonymize your information such that it cannot reasonably be used to infer information about you or otherwise be linked to you (“de-identified information”) (or we may collect information that has already been de-identified/anonymized), and we may use such de-identified information for any purpose. To the extent we possess or process any de-identified information, we will maintain and use such information in de-identified/anonymized form and not attempt to re-identify the information, except solely for the purpose of determining whether our de-identification/anonymization process satisfies legal requirements.

3. COOKIES AND OTHER TRACKING TECHNOLOGIES
Most browsers accept cookies automatically, but you may be able to control the way in which your devices permit the use of Tracking Technologies. If you so choose, you may block or delete our cookies from your browser; however, blocking or deleting cookies may cause some of the Services, including certain features and general functionality, to work incorrectly. If you have questions regarding the specific information about you that we process or retain, as well as your choices regarding our collection and use practices, please contact us using the information listed below.

To opt out of tracking by Google Analytics, click here.

Your browser settings may allow you to transmit a “do not track” signal, “opt-out preference” signal, or other mechanism for exercising your choice regarding the collection of your information when you visit various websites. Like many websites, our website is not designed to respond to such signals, and we do not use or disclose your information in any way that would legally require us to recognize opt-out preference signals. To learn more about “do not track” signals, you can visit http://www.allaboutdnt.com/. To learn more about Global Privacy Control, you can visit https://globalprivacycontrol.org/.

4. DISCLOSURE OF YOUR INFORMATION
We may disclose your information to third parties in accordance with this Privacy Notice, including to the following categories of third parties:

• Our affiliates or others within our corporate group.
• Vendors or other service providers who help us provide the Services, including database administration, payment processing, event registration, learning management systems, security, relationship management, marketing communications, and web analytics.
• Third parties to whom you request or direct us to disclose information
• Professional advisors, such as auditors, law firms, or accounting firms.
  We may also disclose your information as needed to comply with applicable law or any obligations thereunder or to cooperate with law enforcement, judicial orders, and regulatory inquiries, to enforce any applicable terms of service, and to ensure the safety and security of our business, employees, and users.

5. SOCIAL FEATURES
Certain features of the Services allow you to initiate interactions between the Services and third-party services or platforms, such as social networks (“Social Features”). Social Features include features that allow you to access your third-party social media account and “share” our content. Use of Social Features may allow a third party to collect information you post or make accessible and may be publicly displayed by the third-party service. Both we and the third party may have access to information about you and your use of both the Services and the third-party service. For more information, see the section below, Third Party Websites and Links.

6. THIRD PARTY WEBSITES AND LINKS
We may provide links to third-party websites or platforms. If you follow links to sites or platforms that we do not control and are not affiliated with us, you should review the applicable privacy notice, policies and other terms. We are not responsible for the privacy or security of, or information found on, these sites or platforms. Information you provide on public or semi-public venues, such as third-party social networking platforms, may also be viewable by other users of the Services and/or users of those third-party platforms without limitation as to its use. Our inclusion of such links does not, by itself, imply any endorsement of the content on such platforms or of their owners or operators.

7. DATA SECURITY AND RETENTION
Despite our reasonable efforts to protect your information, no security measures are impenetrable, and we cannot guarantee “perfect security.” Any information you send to us electronically, while using the Services or otherwise interacting with us, may not be secure while in transit. We recommend that you do not use unsecure channels to send us sensitive or confidential information.

We retain your information for as long as is reasonably necessary for the purposes specified in this Privacy Notice.

8. UPDATING PREFERENCES
You may access, correct, or delete your information and you may also request a copy of your information in an easily accessible format. You may do any of these at any time by contacting us as at help@alzla.org.

If, at any time, you prefer not to receive further email communications from us (except in connection with information or Services that you specifically request), you may unsubscribe by emailing us your request or by clicking “unsubscribe” at the bottom of our e-newsletter. Please note requests to remove your email address from our lists may take some time to fulfill. If, at any time, you prefer to not receive further SMS communications from us (except in connection with information or Services that you specifically requested), you may reply to any SMS message with the word “STOP” or contact us directly to request removal from our SMS list. Should you opt out of email or SMS communications, and once your request has been fulfilled, we will not send you marketing notifications or correspondence; however, we may still contact you if needed to provide important announcements or notifications regarding the Services for which you have registered, such as a change of venue, a time change, a change in programming, or the like.

Please note that we will not disclose your mobile information with third parties for their marketing or promotional purposes. All the above categories exclude text messaging originator opt-in data and consent; this information will not be shared with any third parties.

9. HOW TO CONTACT US
Should you have any questions about our privacy practices or this Privacy Notice, please email us at help@alzla.org or contact us at 2922 Crenshaw Blvd, Suite 125 Los Angeles, CA 90016.